Collective Knowledge Building
Uniting Wisdom and Evidence
We create a platform to record, analyze, and share information—transforming participants’ experiences into data that validate and improve therapies.
The goal
To implement an information-management platform that supports and validates our therapeutic models.
For these therapies to gain the recognition they deserve, individual experience must be supported by collective evidence. A single testimony is powerful, but hundreds of rigorously analyzed testimonies are irrefutable. This initiative represents our commitment to transparency and continuous improvement. By securely centralizing and analyzing data, we can better understand what works, for whom, and why—allowing us to refine our methods and share findings that reduce stigma and build trust.
Our plan
The map we visualize
Phase 1: Diagnosis and Design
We establish the technological and community foundations of the project. We analyze usability and accessibility to ensure the system is easy to use for everyone. We design the detailed architecture of the database and information platform. We create protocols for a digital forum and a mobile application that ensure accuracy, security, and privacy.
Phase 2: Development
We build the digital tools and begin populating the ecosystem. We develop the data-management system and database to store and organize information securely. We implement the digital forum where moderators can share knowledge. We create analytical tools to visualize data and generate customized reports.
Phase 3: Implementation and Evaluation
We launch the system and measure its impact to enable continuous improvement. We implement evaluation mechanisms to assess the system’s impact and effectiveness in therapy development. We manage virtual spaces and tools for information dissemination and the cultivation of an active knowledge community.
Facing the obstacles
The challenges
Here we outline the challenges we face and how we are overcoming them step by step.
KEY CHALLENGE
Need for an Integrated Data System
The context
To move beyond isolated cases, we require a centralized and secure system that allows us to collect and analyze medical and psychological information in a standardized manner.
Our progress
We have begun applying our first online instruments for recording participants’ medical and psychological information.
Our next step
Our immediate objective is to formally structure the database and begin feeding it with collected information, ultimately integrating all our tools into a single system.
KEY CHALLENGE
Creating and Sharing Generated Knowledge
The context
Collecting data is not enough; true value lies in analyzing it, transforming it into useful knowledge, and sharing it with the community and other key stakeholders.
Our progress
We have begun building a community through messaging platforms and social networks, and we have produced an initial document outlining our therapies and proposed methodologies.
Our next step
Our priority is to develop documents and communication products that disseminate the knowledge we have generated, including the presentation of proposals to public institutions.
Frequently asked questions
Here we answer some of the most common questions about this area of our work.
I have a questionHow is participant privacy and confidentiality protected?
Confidentiality is our highest priority. All collected data is anonymized to protect participants’ identities. Access to information is strictly controlled through security and ethical protocols, ensuring that only authorized personnel can consult it for research purposes.
What is the collected information used for?
The information serves four main purposes:
- To continuously improve and personalize our therapeutic models.
- To generate solid scientific evidence regarding the safety and effectiveness of these practices.
- To publish findings in accessible formats for the general public.
- To use the data to support our public policy proposals.
Who can access this platform or its results?
We design different levels of access. Researchers and therapists on the team have access to anonymized data for analysis. Participants may access their own follow-up data. The general public has access to reports, articles, and summaries published based on our findings.
How does this project differ from other scientific research initiatives?
Our key difference lies in a “collective construction” approach. We do not only collect quantitative data; we actively integrate participants’ subjective and qualitative experiences, as well as the wisdom of guides. This is not research conducted on people, but with people—aimed at building a more complete and human body of knowledge.
